I wanted to take a few moments and write about a couple things that I hope will open your eyes and heart and give you some awareness. One is about something that has become a very large part of my life and caused significant changes. The other is something that could alter or improve that.
A few weeks ago I was diagnosed with a rare spinal disease called Syringomyelia. I don't expect many, if any, of you to know what that is, most doctors don't even know about it. It's a rare debilitating disorder that attacks the core of the spinal cord with cysts that are incurable and barely treatable. My form is from a congenital birth defect and is fairly advanced. In three months time I have gone from being perfectly normal and healthy to walking with a cane, not being able to tie my shoes and experiencing high amounts of pain 24 hours a day. My spinal cord is swelling and crushing the nerves in my spine. It's painful, debilitating and can lead to crippling of the limbs and paralysis.
Not much is known about this disease. Very little research or awareness is being done and many times patients have to teach their doctor what it is and how best to treat it. This, as expected, has changed my life forever. It's caused me to stop and rethink my goals and plans in life and begin to set new ones, and although one could become very depressed with this news (and I certainly have had my down moments) it is teaching me more everyday to appreciate the simple things in life. To slow down and enjoy the present. To learn that life isn't what is thrown at us but what we make of what is being thrown at us.
Now this brings me to my second subject and something that sparked the idea for this article in the first place. It is the right of every human being to be able to choose and use the best treatment available to them. We, along with our families and physicians are of course the best at knowing what is the best treatment for bodies and the illnesses we might face. It is not a politician, body of elected officials or any other spurious group that claims any authority over us.
We should never allow that to happen but in fact, that is exactly what we have done.

Cannabis, among many qualities, is one of the best treatments for my disease. It not only has proven to be a great pain killer with no side effects, as opposed to the many side effects of life long treatments with prescription narcotics, it has also shown in study to help promote new spinal tissue growth which over time could possibly begin to heal the damages done to my spinal cord by this disease.
Now I am not a new advocate for the legalization of cannabis, I have supported that for many years. I am not a recreational user and never have been but I also see that as a personal choice and not of some bureaucrat who has no authority to control your life. I am now though, faced with this in a personal way. To make the decision to use a treatment for pain that will cause damage to my body as I continue to use it and only offer moderate relief or to risk imprisonment if I choose to use a medicine that will offer a safer treatment for my condition.